This Article is About
chronic pelvic pain
bladder infection
pelvic area
thin sheet
going to the bathroom
little bits
daily basis
car accident
Living With Chronic Pelvic Pain, Seeking Answers
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Back on early morning of New Year's Day of 2007, I was in a car accident that has changed my life forever. It was a rollover accident going under 15 mph, the roads were slick and we did not even know there was a thin sheet of ice on the road. My husband and I were both able to go home without seeking medical assistance, and we were even able to drive the car home. There wasn't a fender on it that wasn't damaged from rolling over two times, but we landed wheels up, so didn't even need to get towed from out of the ditch.

As the day went on, I had regular aches and pains that any person might have from being in an accident, but nothing seemed too terribly wrong. The only thing I noticed was when I brushed my teeth before going to bed that night, that when I bent my neck down to spit, I felt a "tingling, shocking" sensation that ran down the front of my body that stopped around the pelvic area.

As weeks and months passed, I continued to feel the sensation when I bent my neck but didn't think much of it. In about August I started having a bit more pain and I was constantly going to the bathroom to urinate, just little bits at a time, but very frequently. So, I decided that even though I didn't have insurance I would go to the doctor. I was tested for a bladder infection, but the tests came back negative. I decided after that maybe I should run out and get some insurance, and even though I got the highest deductible I could find, I at least had something.

The pain and urinary frequency continued and the pain started to get to the unbearable stage. So, I went back to the doctor for more tests, including ultrasounds and a cat scan. The doctors seemed frustrated along with me, unable to determine the cause of the pelvic pain I was by this time now experiencing on a daily basis. So after all the tests and examinations the doctors decided the pain was from a cyst on my ovary and that it would be best to remove the ovary.

So in January 2008, I had one ovary removed and everyone was hopeful this would fix the pain I had experienced for over a year. But, 2 days after the surgery my doctor called with news that was absolutely devastating. The ovary they removed had cancer, and they did not know if it had spread to other parts of my body or not. Less than a month later, they did a radical hysterectomy. This was granulosa cell which is less than 2 percent of all ovarian cancers, and even the doctor that removed the ovary had not even heard of it before now!

Almost a month went by and because I had been recovering and not doing anything other than lying in a hospital bed and then lying on the couch at home recouperating, I hadn't felt the pain. I was still awaiting news on whether they had found cancer beyond the original ovary as well. I did get the call finally that there was no additional cancer cells found so I would not require chemotherapy or radiation. What a relief that was!

But then a few days later I told my husband that I felt that pain returning in the pelvic region. He said that it had to be phantom pain because they had removed everything. That was the same thing I thought, but every day that I started feeling better from the surgery, and the more I got up and around and started doing more and more things, it was obvious that this was NOT phantom pain, that whatever the cause of the pain was before the surgery, it was coming back just as much as if I hadn't had the surgery. So it was back to the doctors.

I went through test after test, some quite uncomfortable I might add, saw doctor after doctor, and to this day which is May 8th, 2011 I continue to have the chronic pelvic pain that I had which started way back on Jan. 2007. I can't do too much complaining about the pain, as I have to remember if I hadn't had the accident, then they probably wouldn't have found the cancer until the ovary burst, and the results would have been... well, I try not think too much about what might have happened.

I am hoping to get my story out to someone that might have gone through a similar experience with chronic pain, or hoping someone in the medical field has dealt with and been able to help someone like me with similar circumstances. My personal doctor is a wonderful doctor and has done as much as she can do to try and help find and fix the cause of my pain, but so far, every professional she has sent me to has come up empty as far as finding an answer as to what is causing the pain.

I have seen a gynocologist, a chiropractor, a uro-gynocologist, a pelvic pain therapist, and even saw a neurologist recently due to the fact they found Cervical Spondylotic Myelopathy. Unfortunately I believe there is a good possibility that the Myelopathy could be a factor in what is causing the pain, but the neurologist didn't believe so, and bluntly refused to even read an article my doctor had found about the connection between Cervical Spondylosis and bladder dysfunction and rectal sphincter dysfunction, both of which are other conditions I suffer as a result of the continuing chronic pain.

I have written more about my 4 year battle with chronic pelvic pain and invite anyone with any advice or suggestions to respond freely and would be grateful for any answers or help. I know I'm not the first person that has ever experienced chronic pelvic pain, but finding help has seemed fruitless, and I am desperately looking for answers.


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